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Received by email:

Important read for all the girls - Please pass on!

A Different kind of Breast Cancer - DO NOT DELETE
Please forward to all of the women in your lives, Mothers, daughters, sisters, aunts, friends, etc.

In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram.

This time it showed a mass. A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health.

She had one year of living each day to its fullest. Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo.

She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died.

She left this message to be delivered to women everywhere:

Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.

Paget's disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole It appeared as a rash, which later became a lesion with a crusty outer edge.

I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me.

It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.

Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. (Mine started out as a single red pimple on the aureole. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.)

What are the symptoms?

1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)

2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

3. Usually only one nipple is effected. How is it diagnosed?

Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even, though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should, order a biopsy of your sore to confirm what is going on.

This message should be taken seriously and passed on to as many your relatives and friends as possible; it could save someone's life.

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin.
If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread...


This is sad as women are not aware of Paget's disease. If, by passing this around on the e-mail, we can make others aware of it and its potential danger, we are helping women everywhere.

Please, if you can, take a moment to forward this message to as many people as possible, especially to your family and friends. It only takes a moment, yet the results could save a life.



Jul. 6th, 2007 03:26 am (UTC)
Re: Email scam?
This, unfortunately, is not a scam. The name they're using may not be correct. But there is a "new" form out as well as something rare like Paget's.
(Deleted comment)
Jul. 6th, 2007 04:06 am (UTC)
Re: Email scam?
The initial facts I'd received on this were from my mother, who is a nurse in an ICU at one of the hospitals here. They'd had quite a buzz about this going around. It's called "Inflammatory Breast Cancer" and it's not the same thing as Paget's.

But since you're not going to take my word for it, I did some quick digging for facts:


This distinguishes between the two by its wording: http://www.mayoclinic.com/health/breast-rash/AN01584



And the Snopes.com reference to it: http://www.snopes.com/medical/disease/ibc.asp

And another site referencing differences: http://www.healthcentral.com/breast-cancer/types-36008-5.html

And again, last paragraph: http://www.center4research.org/pagets.html

That enough for you?
(Deleted comment)
Jul. 6th, 2007 05:57 pm (UTC)
Re: Email scam?
No worries, I understand. And this type of thing is hard to verify if you don't know exactly what a condition is called. I hope the links are helpful and the information useful. It really is a nasty form of breast cancer that gets misdiagnosed a lot, and unfortunately, the longer one waits to treat it, the more fatal it will likely be.
Jul. 6th, 2007 11:17 am (UTC)
Re: Email scam?
it is emotionally pitched like a chain letter and written like a chain letter - and why do they all sound like that anyway? Snopes marks both this and inflammatory breast cancer as true, which the phrasing actually made me doubt too.
(Deleted comment)
Jul. 6th, 2007 05:56 pm (UTC)
Re: Email scam?
I am sorry Sue, but I will continue to post stuff like this. *I* had not heard of it and would not have been on the lookout for it. *I* benefitted from the email and some of my readers have as well. I know you IT cynics (not just you personally) will read it as a form email scam but I found it interesting and truthful enough to post it. I had checked Snopes to see if it was a scam...

I have had enough times of DrHyde, etc. telling me something I had not checked was a scam in snopes to always check these days... ;-p
Jul. 6th, 2007 05:57 pm (UTC)
Re: Email scam?
P.S. I don't mind people telling me it is a scam if it is and I have not realised... ;-p
Jul. 6th, 2007 06:00 pm (UTC)
Re: Email scam?
Also, even if it is *not* 100% truth, anything that gets us to check more often (I personally *still* rarely do!) can only be a good thing!

Sorry - I feel like I am singling you out for many many comment replies. It is nothing personal, honest!

(Deleted comment)
Jul. 7th, 2007 06:30 pm (UTC)
Re: Email scam?
Ah. OK. My bad for misinterpreting tone of text, then. ;-p
Jul. 6th, 2007 07:03 pm (UTC)
Re: Email scam?

I did, for once, remember to check snopes, as well! ;-p
Jul. 6th, 2007 06:04 pm (UTC)
Re: Email scam?
Guys, please don't fight in my LJ, especially when I am good friends with one of you IRL and the other of you is a fellow PwMS and good friend in LJ... ;-p
(Deleted comment)
Jul. 7th, 2007 06:31 pm (UTC)
Re: Email scam?
Yeah - I must have misinterpreted tone of text. Sorry.


Nat S Ford
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