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Dancing with MS - A Summer of Accumulation

I wish that I could force my mother to read and understand this. Just because she knows/knew one person (an ex-coworker of hers) with MS that is not as badly affected as I am with regards to these two symptoms (everyone with MS gets dealt a different hand of symptom cards and to differing levels) must mean that either I am faking it or I am lazy and not bothering to try hard enough. *splat*



( 3 comments — Leave a comment )
Jul. 31st, 2011 01:13 am (UTC)

IME, people have a hard time understanding symptoms they do not experience. My mother spent most of my twenties saying "I just want you to be happy," not understanding how much of an obligation that felt like.

(I didn't tell her I had a could-maybe-be-MS-wait-and-see diagnosis until 5 years after the MRI.)
Jul. 31st, 2011 02:01 am (UTC)
*hugs* Mum used to say that as well. Then again I do have a clinical depression diagnosis as well that she *also does not believe in. I admit to limiting contact with her these days. Small doses are all I can cope with.

I admit, too, that I either did not know about your maybe-diagnosis or had forgotten it - you see, the MonSter ate my memory. Huh. The platitude is true that you can choose your friends but not your family. These days, though, most of the people that are the closest thing I have to friends that are not my hubby or cats live in my computer (LJ, Twitter, WoW, etc.) with a few real life friends that are as far away (London, Seattle, etc.) that they may as well live in my computer.
Jul. 31st, 2011 02:04 am (UTC)
I can pretty much guarantee you didn't know; I don't talk about it much. Since it's a very maybe - there's scars there, but no discernible symptoms - it's very much more of a phantom threat for me.

Yeah. I love my parents, but definitely in very small doses.
( 3 comments — Leave a comment )


Nat S Ford
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