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Dear You-Know-Who-You-Are

crossposted to my LJ and to gimp_vent here (check out the comments there as well!)

Thank you for your opinions. I am sure that these are much more accurate and valid than the knowledge of my GP, therapists and Neurologists. No, I am sure you are right that these mental/emotional symptoms are under my control and that I should not blame the Multiple Sclerosis for them, despite the experience and knowledge of the aforementioned medical experts. As many people have said in the past (and so must, of course, be right due to their sheer body of numbers), I merely need to pull myself together and learn to control my emotions. The fact that the MS is gradually eating away at many parts of my brain and spinal cord (especially in the areas of memory and emotional control/lability, in my case) can be ignored - it is merely the case that I need to be better at Mind-Over-Matter than I currently am. Now, why didn't I or my doctors think of that in the last ten years since I was diagnosed?

No love, Me.

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Comments

( 14 comments — Leave a comment )
alainn_mactire
Oct. 1st, 2008 10:03 pm (UTC)
*hugs*

Whoever said that obviously doesn't have a clue :o(
xx
natf
Oct. 2nd, 2008 12:12 am (UTC)
Thank you.
tidesong
Oct. 1st, 2008 10:15 pm (UTC)
GRRRR! People just DON'T UNDERSTAND anything about MS! Especially how it can affect things other than vision and walking! *sigh*
natf
Oct. 2nd, 2008 12:12 am (UTC)
Thank you.
rain_oubliette
Oct. 1st, 2008 10:20 pm (UTC)
My aunt has MS. I've seen how it has basically crippled her. Even though I don't have the illness, I take offense to such thoughtless prattle.
natf
Oct. 2nd, 2008 12:12 am (UTC)
Thank you.
manoman
Oct. 2nd, 2008 12:08 am (UTC)
MS is a terrrible disease that can affect each person differently, so I don't see how anyone can be giving you advice other than your doctors. Know that there are others who truly understand and care.
natf
Oct. 2nd, 2008 12:12 am (UTC)
Thank you.
moonlightgryph
Oct. 2nd, 2008 12:34 am (UTC)
People can be so ignorant. :( You don't deserve to be treated like that. I'm sorry that you're having to deal with that crap again.

Edited at 2008-10-02 12:36 am (UTC)
natf
Oct. 2nd, 2008 11:38 am (UTC)
*hugs* Thank you!
katzwhskr
Oct. 2nd, 2008 02:22 am (UTC)
Some people are just so stooopid. Don't take their 'helpful' advice personally.
natf
Oct. 2nd, 2008 11:38 am (UTC)
Indeed! Thank you for this.
marypcb
Oct. 2nd, 2008 09:48 am (UTC)
facile understanding says 'oh yes, that person is ill - but that doesn't affect X,Y,Z that I think is intrinsic to the human condition so it doesn't actually change anything'. it's very cruel that MS changes you in a way that makes it hard to explain or control those very changes. you know you do your best and it's for other people to understand more - but I hope it doesn't make you give up because the idiot percentage is not uniformly distributed
natf
Oct. 2nd, 2008 11:40 am (UTC)
It is just sad that I had thought they were all nice people and had begun to consider them friends. This crap always comes "out of the blue" in that I never see it coming. Another trait from the MonSter, apparently. Yeah. Great.

Thanks for this! *hugs*
( 14 comments — Leave a comment )

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